SMA Groups Outraged Over UK Rejection of Spinraza Coverage as Too Expensive

Devastating. Heartbreaking. A death sentence for an estimated 1,000 children with spinal muscular atrophy (SMA). These are among the many angry reactions to Tuesday’s appraisal consultation document issued by a committee of Britain’s independent, government-funded National Institute of Health and Care Excellence (NICE). That opinion recommends against Spinraza (nusinersen), an approved SMA treatment, being added to the subsidized … Continue reading SMA Groups Outraged Over UK Rejection of Spinraza Coverage as Too Expensive