31 Days of SMA: Serei Panh

31 Days of SMA: Serei Panh
0
(0)

View this post on Instagram

Day 4 of 31 Days of SMA Topic: Living with SMA Type 3 This is Serei Panh's story: Staring into the unknowns, my anxiety is dangerously close to being overwhelming. You can’t go back now since you’re committed to the run, the infamous King Con. Remember to breath, Brian would say, as he readies his tethers behind the ski bike. Deep breath… One turn at a time. Don’t look over the edge because it seems like a sheer drop off. In many ways, it’s no different than living with SMA. A lot of anxieties at the top, but the ride is definitely worth it. But if I take it one day at a time, heck, one step at a time I’ll figure it out. I always do. WE always do. You don’t conquer the run by yourself. It’s impossible. You have a team, a group that helps you get back on your bike. A group that laughs with you as you gracefully take a ‘Mayday’ fall because your arm muscles decide to phone it in for the day. In SMA world, you have a group that calms your nerves before that 10t​ h​ spinal tap, a group that helps bring your kayak into the water, a group that sits around a campfire and helps you get up from the fall, because you know.. one beer too many. Yep, definitely worth it. What’s life without bruises and bumps? Everyone goes through it, physically able or not. It’s just another “Character Enhancement” opportunity, right? You just have to find that group that will ride with you. Joe, Ben, Ray, Eric, Luke, Derek, Emily, James, Mike and especially Brian, thanks for the memories and I can’t wait to make more of them! #SMAAwarenessMonth #SMAAwareness #31daysofsma2020

A post shared by SMANewsToday (@smanewstoday) on

Kevin Schaefer is a writer from Cary, North Carolina with SMA Type II. He studied English at NC State University with concentrations in film studies and creative writing, and since graduating he’s been focused on freelance journalism as well as writing comic book scripts. When he’s not writing or consuming excessive amounts of comic books and movies, he enjoys spending time with family and friends and considers himself blessed that they put up with his ramblings. He is the youngest of three and lives with his parents and dog Pandora. The dog gets the most attention.
×
Kevin Schaefer is a writer from Cary, North Carolina with SMA Type II. He studied English at NC State University with concentrations in film studies and creative writing, and since graduating he’s been focused on freelance journalism as well as writing comic book scripts. When he’s not writing or consuming excessive amounts of comic books and movies, he enjoys spending time with family and friends and considers himself blessed that they put up with his ramblings. He is the youngest of three and lives with his parents and dog Pandora. The dog gets the most attention.
Latest Posts
  • X-Men, digestive problems, kevin smith, coronavirus, isolation, toys
  • X-Men, digestive problems, kevin smith, coronavirus, isolation, toys
  • X-Men, digestive problems, kevin smith, coronavirus, isolation, toys
  • X-Men, digestive problems, kevin smith, coronavirus, isolation, toys

How useful was this post?

Click on a star to rate it!

Average rating 0 / 5. Vote count: 0

No votes so far! Be the first to rate this post.

As you found this post useful...

Follow us on social media!

We are sorry that this post was not useful for you!

Let us improve this post!

Tell us how we can improve this post?

Leave a Comment

Your email address will not be published. Required fields are marked *

Pin It on Pinterest

Share This