Advice From a Life Coach: Resolutions, Mindsets, and Emotions
Last summer, I met a new friend, Amber Bosselman, at the Virtual Cure SMA Conference. Amber is a certified life coach with a bachelor’s ... Read more
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Online for 2021, Team Cure SMA Race Series Planning Variety of Events
The COVID-19 pandemic has forced many activities to be online only, but in the case of this year’s Team Cure SMA endurance race series, ... Read more -
This Is ‘Soaring With Hope’ — Welcome Aboard!
Doesn’t it feel like we all carry a lot of baggage in life? If we could just forget about all the negatives, we could ... Read more -
Another Farewell, a ‘Looth Tooth,’ and an Old-fashioned Snow Day
Kudos and a whew! to us all for surviving 2020. Vastly understated, last year was memorable. Overall (and thankfully), my family managed to welcome ... Read more
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Researchers Discover Promising New Gene Therapy Approach for Spinal Muscular Atrophy
News
A new genetic approach to restore the expression of the gene that causes spinal muscular atrophy (SMA) in patients’ cells holds promise to effectively and permanently treat the disease, researchers suggest. The study, “Seamless genetic conversion of SMN2 to ... Read more