Caring for a child with SMA is not only taxing on a family emotionally and physically, but it can also be quite taxing on your finances. Even if you have ... Read more

Follow us on Facebook. MORE: Cure SMA’s Webinar on the FDA approval of Spinraza SMA News Today is strictly a news and information website about the disease. It does not provide medical ... Read more

This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy nine-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler. Learn all about ... Read more

In this CSIC video, learn all about the new exoskeleton designed specifically to give children with spinal muscular atrophy (SMA) a chance to stand and walk. The innovative new product was unveiled in Spain. ... Read more

  In this video from Muscular Dystrophy UK, patients, caregivers and medical professionals talk about some of the best practices that should be adopted when it comes to the treatment ... Read more