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By Michael Morale, BioNews Services’ Director of Multichannel Content Most people go to physical therapy because they’ve suffered an injury or are recovering from surgery. Previously, those of us with spinal muscular atrophy (SMA) were told not to do physical therapy because stressing our muscles to make them stronger…

Caring for a child with SMA is not only taxing on a family emotionally and physically, but it can also be quite taxing on your finances. Even if you have great health insurance (which let’s be honest, is rare), having a full-time caregiver can be incredibly expensive—whether that’s an…

Caring for someone with spinal muscular atrophy will present many challenges along the way. As your child grows, these challenges will change and you will need to be flexible and adaptable. We’ve compiled a list of some general tips to help you with some of the milestones your child will…

Patients with spinal muscular atrophy (SMA) will need support care in various different areas, from healthcare to daily life. To help you prepare, we’ve put together a list of some of the different support care areas you can expect to come into contact with if you or a loved one has…

While there is currently no cure for spinal muscular atrophy (SMA), there are ways to manage the disease to improve the quality of life for the patients. Here are some of the treatments available for SMA patients according to the UK National Health Service. 1. Exercise Exercise is extremely important…

Follow us on Facebook. MORE: Cure SMA’s Webinar on the FDA approval of Spinraza SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for…

Finding out your child has a neuromuscular disorder is an incredibly difficult time for the whole family, but you adjust quickly. While your child’s unlikely to realize they’re different from other children when they’re young, they’ll start to question why they’re different from their peers and siblings as they get older. MORE:…

This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy nine-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler. Learn all about the new exoskeleton designed to specifically give children who suffer from spinal muscular atrophy (SMA) a chance…

In this CSIC video, learn all about the new exoskeleton designed specifically to give children with spinal muscular atrophy (SMA) a chance to stand and walk. The innovative new product was unveiled in Spain. Long-term exercise was found to benefit mice models of spinal muscular atrophy (SMA), providing important…

  In this video from Muscular Dystrophy UK, patients, caregivers and medical professionals talk about some of the best practices that should be adopted when it comes to the treatment and management of muscle-wasting diseases such as muscular dystrophy and spinal muscular atrophy (SMA). They explain how many…