Caring for a child with SMA is not only taxing on a family emotionally and physically, but it can also be quite taxing on your finances. Even if you ... Read more
Caring for someone with spinal muscular atrophy will present many challenges along the way. As your child grows, these challenges will change and you will need to be flexible ... Read more
Patients with spinal muscular atrophy (SMA) will need support care in various different areas, from healthcare to daily life. To help you prepare, we’ve put together a list of some ... Read more
While there is currently no cure for spinal muscular atrophy (SMA), there are ways to manage the disease to improve the quality of life for the patients. Here are some ... Read more
Follow us on Facebook. MORE: Cure SMA’s Webinar on the FDA approval of Spinraza SMA News Today is strictly a news and information website about the disease. It does not provide ... Read more
Finding out your child has a neuromuscular disorder is an incredibly difficult time for the whole family, but you adjust quickly. While your child’s unlikely to realize they’re different from ... Read more
This MediaStorm documentary is all about Philly Mayer. Philly is a bright and happy nine-year-old boy who was diagnosed with spinal muscular atrophy (SMA) as a toddler. Learn all ... Read more
In this CSIC video, learn all about the new exoskeleton designed specifically to give children with spinal muscular atrophy (SMA) a chance to stand and walk. The innovative new product was unveiled in ... Read more
In this video from Muscular Dystrophy UK, patients, caregivers and medical professionals talk about some of the best practices that should be adopted when it comes to the ... Read more
Spinal muscular atrophy (SMA) is a rare genetic disorder that affects around one in 10,000 babies. The severity of the disease varies, but children with SMA are usually unable ... Read more
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