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5 Steps of Diagnosing SMA

Spinal muscular atrophy (SMA) is a rare genetic disorder that affects around one in 10,000 babies. The severity of the disease varies, but children with SMA are usually unable to walk and after time, muscle degeneration can affect their ability to sit, swallow and breathe without assistance. Diagnosis of the…

This Free Equipment Will Help With SMA Care

Caring for a child with SMA is not only taxing on a family emotionally and physically, but it can also be quite taxing on your finances. Even if you have great health insurance (which let’s be honest, is rare), having a full-time caregiver can be incredibly expensive—whether that’s an…

8 Ways to Feel Happier

It can sometimes be a challenge to look on the bright side when you have a chronic illness, but spending time doing things that make you happy will help keep depression at bay, help you come to terms with your illness better and begin enjoying life again. To help you feel happier,…

8 Tips to Help You Deal With a Loved One’s Passing

Learning that a loved one has a chronic illness is devastating, and even more so if that illness is likely to cut their life short. Everyone deals with the death of loved ones differently, the grieving process is varied and there is no wrong or right way to go about…

This Is What Causes SMA

If your child has recently been diagnosed with SMA, there’s probably just one question on your mind: why? The emotions and questions will change over time, but it’s quite natural to immediately wonder why this happened to your family or if there was something you could have done as a…

6 Foods That Can Help You Fight a Cold or Flu

Winter is a perilous time if you have a compromised immune system, but you can’t stay alone inside for four months. You have to get on with your daily life, and just hope you don’t succumb to other people’s bugs and illnesses. However, there are some foods that can help you avoid catching a cold…

3 Main Symptoms of Spinal Muscular Atrophy

Spinal muscular atrophy (SMA) is a genetic condition that affects a child’s range of movement due to the ongoing degeneration of muscle tone. There are three main symptoms of the disease, the severity of which will depend upon the type of SMA the patient has: Type 1 presenting the most severe…

6 Educational Resources From the Muscular Dystrophy Association

When your child starts school you may need some help settling in and preparing the school and teachers for meeting your child’s needs. The Muscular Dystrophy Association (MDA) offers a range of educational resources designed to help children with muscular dystrophy and spinal muscular atrophy (SMA) get the most…

12 SMA Resources for Young Adults

Just because you have spinal muscular atrophy (SMA) doesn’t mean you can’t live a rich and fulfilling life. Young adults with SMA want the same things as young adults without SMA: go to college, get a job they enjoy, live independently. However, they may need a little bit of help along the way. We’ve…