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5 Frequently Asked Questions About SMA

Spinal muscular atrophy affects around one in 10,000 newborns. Here are five frequently asked questions about the condition according to Cure SMA: Spinal muscular atrophy (SMA) is a genetic disease that affects mostly children but comes in different forms. The severe neuromuscular disease affects…

VeinViewer Will Help Nurses With IVs and Blood Tests

Anyone with a chronic illness will testify that they spend a lot of time in the doctor’s office having blood work done. Which means getting pricked with a lot of needles, which can sometimes take two or three (or more) attempts to find a compliant vein. Here are eight notable people…

SMA Issues for Young Adults

Approximately one in 10,000 newborns is affected by spinal muscular atrophy (SMA), a condition that results in muscle wasting and severely impaired mobility. Read about the four different areas of SMA management. In this fightsmavideo video, listen to researchers and parents at the 2016…

Learning More About the Faulty Gene in SMA

Approximately one in 10,000 newborns is affected by spinal muscular atrophy (SMA), a condition that results in muscle deterioration and impaired mobility. Here are eight notable people who have spinal muscular atrophy. In this Roche video shared in August 2014, computer-generated graphics explain the relevance of motor neuron cells and…

5K for Spinal Muscular Atrophy Support

In this WYMT Television video, learn more about Kirsten’s family, who saw their lives change when she was diagnosed with spinal muscular atrophy (SMA). The family is determined to keep fighting, and to do so, they host an annual 5K in support of researching,…

8 Tips to Help You Stay Active Through the Holidays

Staying active when you have spinal muscular atrophy (SMA) can help alleviate some symptoms. But over the holidays it can be difficult to find the time to do so. With this in mind, we’ve put together a list of tips to help you find time to exercise throughout the…

10 Inspiring SMA Stories

Follow AJ Brockman‘s story in this film shared in 2011. AJ is an award-winning digital artist from Palm Beach Gardens, Florida who has always loved art. Diagnosed with spinal muscular atrophy (SMA) in infancy, AJ has been wheelchair-bound since he was two years old.

How a Young Boy Makes Sick Children Smile

This Sewing Hope video from The Feed is all about the awesome Campbell Remess, a 12-year-old boy from Hobart, Tasmania, Australia. Unlike other boys his age, Campbell is not interested in playing video games or watching movies–he prefers to spend all of his free time hand-making teddy…

9 Ways to Motivate Yourself to Exercise

Exercising and keeping as fit as possible is encouraged for everyone, but when it comes to spinal muscular atrophy (SMA) patients, physical exercise might represent a promising approach to alleviate SMA symptoms. Here are nine ways to motivate yourself to get out there and start exercising, based on tips from…