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The Importance of Nutrition and Exercise for SMA Patients

While there is still no cure for spinal muscular atrophy (SMA), there are some ways to manage the disease in order to improve the quality of life for the patients. Did you know that regular exercise was seen to protect motor neurons in spinal muscular atrophy animal study?  In this …

9 Super Foods to Boost the Immune System

With winter just around the corner, it’s time we all started to look after ourselves a little more. Avoiding germs is one thing, but we can also try and boost our immune systems by getting plenty of sleep and eating the right foods. Here are nine foods known for their…

10 Tips to Get You Through Cold and Flu Season

It’s that time of year when everyone starts to get sick and pass around their cold and flu germs. Having a chronic illness means that your immune system is already compromised, which makes picking up other people’s winter illnesses harder to avoid. However, you don’t have to lock yourself away…

Fightin’ Words: SMA Issues for Young Adults

Research is key to improving life expectancy and quality of life for SMA patients. In this fightsmavideo video, listen to researchers and parents at the 2016 FightSMA Annual Research Conference talk about how families deal with spinal muscular atrophy. Recently,…

5 Experimental SMA Therapies You Might Find Interesting

1. AVXS 101 Recently, AveXis’ gene therapy candidate AVXS-101, the only gene therapy for spinal muscular atrophy currently in human testing, has been granted FDA orphan drug status for treatment of all types of SMA. It was also granted FDA breakthrough therapy designation and fast track designation. Read about it…

New Report Recommends SMA Carrier and Perinatal Screening

Screening for spinal muscular atrophy (SMA) in high-risk groups could greatly reduce the impact of the disease, according to a new article published by researchers in Ottawa. The report, “Opening the window: The case for carrier and perinatal screening for spinal muscular atrophy,” was published in the journal Neuromuscular Disorders.

SMA: Eric Murphy’s Story of an ‘Amazing Life’

Want to learn more about spinal muscular atrophy? Enter here. Dive onto Eric R. Murphy‘s life through this student-made short documentary that reveals how he maintains an ordinary life in spite of spinal muscular atrophy (SMA). In his own words, Eric describes day-to-day difficulties…

Spinal Muscular Atrophy: An Introduction

In this DNA Learning Center video, watch Dr. Darryl De Vivo describe spinal muscular atrophy (SMA) including its cause and symptoms. Want to learn more about spinal muscular atrophy? Click here. “It is a rare disease like many of the…

SMA Treatment: Story of a 6-Year-Old

Progress reports on six treatment options for spinal muscular atrophy (SMA), all currently in clinical trials, were recently spotlighted at the 2016 Annual SMA Conference in Anaheim, Calif. In this Nationwide Children’s Hospital video meet the Kingsley family and 6-year-old Brett who was diagnosed…