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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This forum has 129 topics, 191 replies, and was last updated 1 week, 3 days ago by DeAnn R.

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- Voices
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- Dose of DeAnn Episode 15: The Great Straw Debate
  Started by: DeAnn R
- 1
- 2
- 1 year, 11 months ago
  DeAnn R
- The Morale Monologue #6 – SMA Not Funded in the UK
  Started by: Michael Morale
- 4
- 6
- 1 year, 11 months ago
  Esther Collington
- The Morale Monologue Episode #6
  Started by: Michael Morale
- 1
- 1
- 1 year, 11 months ago
  Michael Morale
- The Morale Monologue #5 – Avexis Is Expanding Operations To North Carolina
  Started by: Michael Morale
- 1
- 1
- 2 years ago
  Michael Morale
- Dose of DeAnn Episode 14: Chores and Responsibilities
  Started by: DeAnn R
- 2
- 4
- 2 years ago
  Kevin Schaefer
- The Morale Monologue Episode 5
  Started by: Michael Morale
- 1
- 1
- 2 years ago
  Michael Morale
- The Morale Monologue #4: Cytokinetics Phase 2 Results We Have So Much To Look Forward To
  Started by: Michael Morale
- 3
- 3
- 2 years ago
  DeAnn R
- Dose of DeAnn Episode 6: Hobbies
  Started by: SMA News Today Moderator
- 3
- 4
- 2 years ago
  Adnan Hafizovic
- Dose of DeAnn Episode 13: Navigating Large Crowds
  Started by: DeAnn R
- 3
- 3
- 2 years ago
  Ryan Berhar
- The Morale Monologue #3: Who Is Envisagenics And What Is SpliceCore?
  Started by: Michael Morale
- 1
- 1
- 2 years, 1 month ago
  Michael Morale
- The Morale Monologue Episode 4
  Started by: Michael Morale
- 1
- 1
- 2 years, 1 month ago
  Michael Morale
- The Morale Monologue Episode 3
  Started by: Michael Morale
- 2
- 4
- 2 years, 1 month ago
  Kevin Schaefer
- Dose of DeAnn Episode 12: Occupational Therapy
  Started by: DeAnn R
- 2
- 4
- 2 years, 1 month ago
  Kevin Schaefer
- The Morale Monologue #2: Who is Scholar Rock and what is SRK-015?
  Started by: Michael Morale
- 1
- 1
- 2 years, 1 month ago
  Michael Morale

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