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    Celebrating “Inchstones” in SMA

    A mother’s perspective: How our family measures progress since treatment

    You couldn’t picture a happier or more beautiful little boy than the one who came into our lives on January 4, 2019. Little did we know, this bundle of joy we named Slade was just starting a journey that was going to change our family’s life.

    About 2 weeks after Slade was born we started to notice that he appeared to be a bit floppy. Our pediatrician chalked it up to him being a calm baby and told us he’d eventually grow out of it. With my husband being a chiropractor and my background in early childhood development, we knew something was wrong–we could just feel it.

  • This topic has 0 replies, 1 voice, and was last updated 6 months, 1 week ago by Kevin Schaefer.

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      • #20251
        Kevin Schaefer

        Hey everyone! It’s almost Friday!

        Check out today’s 31 Days of SMA story here. Annie wrote about how she acquired an adaptive van. This is a fascinating topic, and Annie outlined the process in detail.

        Personally, I’ve never really considered driving myself. I’m content with family and friends driving me, and I can’t afford a vehicle. Still, it’s great that this is an option. For those of you who do want an adaptive vehicle, I hope you find this post helpful.

        Do you have any takeaways from Annie’s story?


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