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The importance of newborn screening for SMA

Rory and Carolyn met in seminary, fell in love, and got married. They decided to hold off on starting their own family while they settled into their first jobs in North Dakota. After a few years, they moved to Minnesota, where Rory accepted a job as a minister, and Carolyn enrolled in a hospital chaplain residency program. At the time, they did not know how important the decision to move would be for their future family. When they moved, neither North Dakota nor Minnesota had SMA on their newborn screening panel. It wasn’t until March 2018 that Minnesota adopted and implemented newborn screening for SMA, and then several months later, in 2018, Rory and Carolyn’s only son Edan was born.


This topic has 0 replies, 1 voice, and was last updated 2 years, 1 month ago by Kevin Schaefer.

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    • #13633
      Kevin Schaefer
      Keymaster

      I’m currently looking for a device to connect to my iPad that I can control the onscreen keyboard through. I went to the Apple store last night, and they said there aren’t any mouses for iPads or apps that connect a phone to an iPad. The person helping me did recommend checking out the Apple Accessibility Accessories page: https://www.apple.com/shop/accessories/all-accessories/accessibility.

      I looked at the control switches here that you can use to control the onscreen keypad of an iPad with, and something like this would be ideal. I’m just wondering if anyone here has tried any of these devices. Is there one in particular you recommend? I need something that’s easy to use and doesn’t require a hard push. Any advice would be appreciated.

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