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    Planes, Trains, & Accessible Travel With SMA

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    Traveling with a child is never easy. Traveling with a child in a wheelchair is an extra challenge. The first time Leah flew on an airplane, she was six months old, almost a year before she was diagnosed. We have always been a traveling family and once she was diagnosed, we were both hopeful and determined that it wouldn’t hold us back.

    I have always flown with Leah by myself, just the two of us. Call me crazy; it’s OK, I am. There are some things we have learned that have made it so much easier for us.

  • This topic contains 1 reply, has 2 voices, and was last updated by  Ryan Berhar 4 months ago.

    • Author
    • #19360
       DeAnn R 

      In Katie Napiwocki’s latest column, she wrote about going to an event near her hometown, and being mixed up with another individual in a wheelchair. Read this column here

      I know this has happened to me on several occasions, especially with one person in particular. As with Katie, I’m so much more than just the girl in the wheelchair; but I know oftentimes that’s how I’m seen. I also relate to the aspect of being recognized by others more often than I recognize them, because of the wheelchair.

      Have similar situations happened to you? What other takeaways do you have from this column?

    • #19373
       Ryan Berhar 

      The only time I recall this happening was with a cashier at Fred Meyer who got me mixed up with another guy in a wheelchair.

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