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Does Anyone who’s on Spinraza Have to do Medical Evaluations?
So, I had to do an evaluation a few months ago while I was at the MDA clinic to see if my treatments were having any effect. I was able to exhibit a little more strength than usual, and they mainly had me do things like moving small objects around on my tray with no assistance.
I was just curious if anyone else has done this. If so, what was your experience like?
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2 Replies
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Before my fifth dose I had another physical therapy assessment and a pulmonary function test that they compared to my baseline. My PT assessment showed a 5 point improvement on the upper limb scale. I still can only tear through one layer of paper and can not open a glad container, but there was minor improvements, so I’ll take it. Not sure how often we do these. Next time I’m tearing through 2 layers…lol.
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Yeah I thought it was kind of dumb at first, but then once I actually did the tests it was cool to see just slight improvements. And yeah sounds like a good goal.
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