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How different generations living with SMA can teach one another

Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”

This topic has 3 replies, 3 voices, and was last updated 6 months, 1 week ago by Kevin Schaefer.

  • Author
    • #22182
      Kevin Schaefer

      Hey everyone! Please take a few moments to fill out this survey about flight accommodations for wheelchair users. An advocacy organization called Rare Courage partnered with the nonprofit All Wheels Up on this project. Read more about this partnership here.

      Thanks everyone!

      Click here to take the survey

    • #22189
      Alyssa Silva

      Such an important topic that doesn’t get enough awareness. I swear I could write a book on all the horror stories I’ve faced with airlines. So glad to see this partnership!

    • #22192
      Tracy Odell

      There seems to be something wrong with the link. I get an error message saying “Access denied. This website is using a security service to protect itself from online attacks.”  I also tried to link to it directly from the article and got the same error message. Did anyone else have this problem?

    • #22198
      Kevin Schaefer

      Hey Tracy, my apologies. This survey can only be accessed in the U.S. Sorry for the inconvenience!

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