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My diagnosis story and some questions.
Hello, guys, so I’m not sure what disease do I have, muscular dystrophy or muscular atrophy. I live in Moldova. The medical care there is in bad shape.
The thing is I have a brother, older than me, he went to Moscow some years ago(6-8 years, not sure) to do some tests on these diseases. The healthcare personnel from Moscow diagnosed him with Spinal Muscular Atrophy, but in my Medical Card it is said that I have Duchenne Muscular Dystrophy. As I know this is impossible(no one of us is adopted). Last year, both of us have done the test on Duchenne Muscular Dystrophy at some private medical company(I will send the name when if I found it). The test said for both of us that we don’t have that disease, but also in the result there was a text about trying other test methods, cause other test methods may show a different result.(We haven’t tried yet.)
Also our symptoms are slightly different from the ones with those diseases. I mean we have muscle atrophy or degradation, but this process is much slower.
I’m 19 years old, I can breath properly and I lost the ability to walk ~one year ago. My brother is 39 years old, and he lost the ability to walk at 20-25 years(I think) and he also can breathe properly.
Can you guys say what do you think, which disease it may be? Can you recommend some companies which provide tests or better medical care?
I want to know properly what disease me and my brother have.
Thanks and sorry for my bad english.
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