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Outliers and Living With SMA
Happy Friday everyone! Hope you all have a great weekend.
Here’s Alyssa’s latest column, in which she writes about how outliers come into play when you have SMA: https://smanewstoday.com/2019/02/22/outliers-spotted-zebras-and-life-with-sma/.
I’m sure most of us can relate to this. We’ve probably all had a doctor tell us at some point: “Hm, I’ve never seen this before.” It comes with living this life. It helps to be reminded that we’re not alone in these situations.
Do you have any stories like this?
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3 Replies
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When I was eight I had a spinal fusion, but several years later I got very sick and the rods broke loose from where they were anchored to my pelvis. This has allowed my spine to start shifting so that my tailbone nearly points up. A few years ago I stated seeing a surgeon who had originally worked on my surgery but then transferred to seeing adult instead of children. He hadn’t seen me since the surgery, and upon looking at the xrays of my back he stared at the screen and said, “I… don’t know how you did that…” He still hasn’t figured it out.
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Usually we’re the ones teaching the doctors. Haha
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What Ryan said haha.
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