• Spinraza (nusinersen)

  Second Wave of Adults Seeking Spinraza

  Posted by deann-r on March 12, 2019 at 10:34 am

  I jumped on the Spinraza bandwagon pretty quickly.  That’s not the case for everyone.  For various reasons many decided to hold off.  Recently though I’ve noticed on social media it appears there’s an uptick in the number of adults going through process of getting Spinraza for the first time.  I want to say, welcome to the club!  I still remember the excitement and apprehension when I got my first dose.  You never really know what it’s like until you’ve done it.  If anyone has questions or stories they’d like to share please feel free to do so.

  deann-r replied 5 years, 1 month ago 1 Member · 0 Replies

  • Adults getting treatment
  • Living with SMA
  • SMA
  • spinraza
  • Starting Spinraza
  • treatment
• 0 Replies

Log In to Reply