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SMA News & Perspectives – Weekly Recap (Mar 2 – Mar 6)
SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from March 2 to March 6.
March 2
When it comes to public interactions with people who have disabilities there are no set rules. As someone who has a disability, DeAnn shares her thoughts on this topic.
Also, listen to SMA News Today’s multimedia associate, Price Wooldridge, discuss how the Muscular Dystrophy Association leads in helping others with care centers, research, and a summer camp.
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March 4
February 29th was recognized as Rare Disease Day across the world. SMA News Today columnists shared what this day meant to them. A social media campaign was also successful in bringing awareness to rare diseases and celebrating #WhatMakesMeRareSMA.
Also, forums Director Kevin Schaefer shares how music plays a big part in his life in his latest column.
https://soundcloud.com/sma-news-today/rare-disease-day-whatmakesmeraresma-and-music
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March 6
Forums Director Kevin Schaefer talks about maintaining long-distance friendships, particularly with people in the SMA community.
SMA News Today’s multimedia associate, Price Wooldridge, details an MDA executive’s discussion of gene therapies, SMN2 gene modifiers, and the challenges in treating SMA.
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