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SMA News & Perspectives – Weekly Recap (November 11 – November 15)
SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from November 11 to November 15.
November 11
Forums moderator DeAnn Runge shares how stressful the scheduling process for Spinraza is for her. With so many aspects to consider it’s increasingly becoming a pain. Even more so than the injection itself.
We discuss how Scholar Rock’s early data supports the development of SRK-015, for SMA types 2 and 3.
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November 13
Forums Director Kevin Schaefer talks about having a high quality of life while living with SMA.
DeAnn Runge’s Segment: In his column, Five Servings of Strength, Michael Casten shares how his family meets challenges head on. Most recently he chronicles Halloween night and in another column shares the little things they do to put family first.***
November 15
We discuss early trial data that shows how Zolgensma produces promising results in young children with type II SMA. Forums Director Kevin Schaefer reads an excerpt from Kala Godin’s latest column,
“Progression Looks Different for People with SMA.” -
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