Meet Regina and Al. Their friendship and respect for one another all started at a fundraiser before a Phillies baseball game in 2019. “I watched Regina give a beautiful speech at the event about her recently diagnosed son, Shane,” recalled Al. “I thought to myself, ‘My friends at Cure SMA need to meet this amazing mom and get her involved.’”
Hey all. On behalf of the moderators here, we first want to thank you for being a part of our forum community. It has truly been an honor getting to know you and build relationships based on one commonality we all have— spinal muscular atrophy.
That being said, we wanted to check-in and get your feedback. Do you have any suggestions on how we can improve this little community?
What are some topics or conversations you’d like to see here?
Please let us know as we are here to serve you and each other!
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FDA Approves ZOLGENSMA for SMA! Talk about it now — click below:
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