SMA News & Perspectives – Weekly Recap (August 12 – August 16)

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     SMA News Today Moderator 
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    SMA News Today forum moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from August 12 through August 16.

     

    August 12

    We discuss how SMA patients in Ontario are being granted wider access to Spinraza. Then, Director of Multichannel Content, Michael Morale, discusses how current treatments are giving people with SMA a brighter future.

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    August 14

    Director of Multichannel Content, Michael Morale, discusses options for receiving Zolgensma. Then, Community Development Manager Kevin Schaefer reads from Angela Titcombe’s 31 Days of SMA story. Angela talks about being a teacher with SMA.

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    August 16

    We discuss “Rare Barometer”, which is a program that is helping Eurordis shape EU rare disease policies. Also, Community Development Manager Kevin Schaefer reads from his latest column about diversity within the SMA community.

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