SMA News & Perspectives – Weekly Recap (August 19 – August 23)

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     SMA News Today Moderator 
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    SMA News Today forum moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from August 19 through August 23.

    August 19

    We discuss how raising levels of Alpha-COP proteins, seems to ease SMA disease severity in mouse models. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about being on Spinraza for 2 years, and also gives an update regarding her 9th Spinraza injection.

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    August 21

    SMA News Today’s Director of Multichannel Content, Michael Morale, discusses an interview where researchers talk about Zolgensma’s price, and its cure one, cure many potential. Also, Community Development Manager Kevin Schaefer reads from the latest 31 Days of SMA story. This post focuses on concert accessibility.

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    August 23

    We discuss a study that suggests that the small RNA molecule miR-23a, may have a therapeutic role in SMA. Also, Community Development Manager Kevin Schaefer reads from his latest column. In this post, he reflects on how a college writing course prepared him for his career.

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