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SMA News & Perspectives – Weekly Recap (Feb 17 – Feb 21)

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      SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from February 17 to February 21.

       

      February 17

      Finding the balance between living cautiously and fearfully can be challenging. Forums moderator DeAnn Runge shares how she navigates that delicate balance.

      Also, SMA News Today’s multimedia associate, Price Wooldridge, discusses how magnetic rods may be an alternative treatment to correct scoliosis in children with SMA.

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      February 19

      Forums Director Kevin Schaefer reads from this week’s motivational post in the SMA News Today forums and we’re also happy to welcome Katie Napiwocki back into the rotation of SMA News Today columnists! In her latest column, Peering Through the Fog of Fear, she explains why she took a break from writing about SMA and how she came to the decision to stop her Spinraza treatments.

       

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      February 21

      Forums Director Kevin Schaefer talks about some of the trending topics in the SMA News Today forums.

      Also, SMA News Today’s multimedia associate, Price Wooldridge, discusses how a CSF protein profile may help predict Spinraza responses in late-onset SMA patients.

       

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