SMA News & Perspectives – Weekly Recap (Jan 13 – Jan 17)

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      SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from January 13 to January 17.

      January 13

      We discuss how targeted genetic screening may be useful in diagnosing patients with SMA-like symptoms. Also, a harmless prank can be fun, but it’s not always easy when you have SMA. With the help of her niece DeAnn pulled a prank on her Mom.

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      January 15

      Forums Director Kevin Schaefer talks about the importance of media
      representation for people with disabilities, and calls for more of it in 2020. Also, great conversations are going on in the forums. Alyssa is adjusting to her new wheelchair. DeAnn is dealing with a caregiver who is under the weather. Other topics include managing caregivers, when kids recognize disability and how humorous interactions can lighten the day.

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      January 17

      We discuss a study that states how a multidisciplinary approach improves the Spinraza dosing process in SMA patients. Also, Forums Director Kevin Schaefer reads the latest piece by parent columnist
      Michael Casten.

      Are you interested in learning more about the spinal muscular atrophy? Please visit http://www.smanewstoday.com

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