SMA News & Perspectives – Weekly Recap (July 15 – July 19)

This topic contains 0 replies, has 1 voice, and was last updated by  SMA News Today Moderator 1 month ago.

  • Author
    Posts
  • #19903
     SMA News Today Moderator 
    Participant

    SMA News Today forum moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from July 15 through July 19.

    July 15

    We discuss how the National Center For Advancing Translational Studies, (NCATS), warns that rare diseases constitute a public health issue. Also, SMA News Today forums moderator DeAnn Runge shares her perspective about going with the flow and living with SMA.

    ***

     

    July 17

    SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how Zolgensma can help babies treated early, but older patients may also benefit. Also, Community Development Manager Kevin Schaefer reads from his latest column, in which he shares some of the highlights from the 2019 Cure SMA Conference.

    ***

     

    July 19

    We discuss an interview with a mom who says that her child lived through death with SMA and through life with Spinraza. Also, Community Development Manager Kevin Schaefer reads an excerpt from Brianna Albers’ latest column.

You must be logged in to reply to this topic.

  • Videos

  • ©2019 KLEO Template a premium and multipurpose theme from Seventh Queen

    CONTACT US

    We're not around right now. But you can send us an email and we'll get back to you, asap.

    Sending
    or

    Log in with your credentials

    or    

    Forgot your details?

    or

    Create Account

    Copyright © 2017-2019 All rights reserved.