SMA News & Perspectives – Weekly Recap (June 17 – June 21)

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      SMA News Today forum moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from June 17 through June 21.

       

      June 17

      We discuss how a nonprofit group is working to raise rare disease awareness in India. Also, SMA News Today forums moderator DeAnn Runge talks about how living with SMA has taught her the meaning of patience.

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      June 19

      SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how some Spinraza users shared their stories in a Biogen webcast. They discuss how they went from a gut-wrenching diagnosis to a wonderful drug. Also, Community Development Manager Kevin Schaefer reads from a forum topic about swimming pool lifts for people with disabilities.

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      June 21

      We discuss a recent study that suggests how parents need supportive care as their children transition to wheelchairs. Also, Community Development Manager Kevin Schaefer talks about how Spinraza has affected his head and neck control in his latest column.

       

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