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This group is for SMA patients, caregivers and medical professionals to discuss the latest research and news related to SMA. Here, information regarding treatments, research and development will be shared, and any input from the SMA community is welcome.
SMA News & Perspectives – Weekly Recap (November 4 – November 8)
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SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from November 4 to November 8.
November 4
We discuss how the FDA placed a partial hold on the STRONG trial of AVXS-101, citing a concern that was seen in an animal study. This time of year forums moderator DeAnn Runge tends to Binge watch TV series. Her recent binge, Call the Midwife, led her to inquire about the history of SMA. Are you familiar with how SMA was discovered? With her knowledge that SMA was around when the show took place, she’s curious if a case will present itself during the course of the show.
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November 6
A new moderator is joining the SMA News Today forums. Alyssa Silva is a current columnist and will also be moderating the forums along with her co-moderators to give a unique perspective on a variety of topics.
Forums Director Kevin Schaefer shares his thoughts on existing and emerging treatments for SMA.
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November 8
Forums Director Kevin Schaefer recaps some of our recent columns. We discuss how risdiplam continues to show survival and motor function improvements, according to trial results.
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