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SMA News & Perspectives – Weekly Recap (October 14 – October 18)

This topic has 0 replies, 1 voice, and was last updated 7 months, 2 weeks ago by SMA News Today Moderator.

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      SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from October 14 to October 18.

       

      October 14

      We discuss how clinicians described a rare case of SMA associated with a teen who had epilepsy. Although alternative options for seating look appealing, forums moderator DeAnn Runge explains why this isn’t usually the case for her. She finds her wheelchair to be the most comfortable place.

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      October 16

      Forums moderator DeAnn Runge gives us an overview of the forums and updates us on recent discussions. If you haven’t already checked out the forums she encourages you to head on over and introduce yourself. Also, Forums Director Kevin Schaefer talks about how his love of coming-of-age stories relates to living with SMA.

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      October 18

      We discuss how small differences that marks SMA type 2, brought a baby girl’s family from the UK to Ohio for her Zolgensma treatment & Forums Director Kevin Schaefer reads from Alyssa Silva’s latest column, “On Fulfilling My Role as Maid of Honor.”

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