SMA News & Perspectives – Weekly Recap (September 16 – September 20)

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     SMA News Today Moderator 
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    SMA News Today forum moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcast episodes from September 16 through September 20.

     

    September 16

    First, we discuss how an RNA therapy that’s delivered via a viral vector might have the potential to treat SMA. In the next segment, Forums Moderator DeAnn Runge talks about how airline travel is difficult for wheelchair users.

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    September 18

    Community Development Manager Kevin Schaefer talks about some of the trending topics in the SMA News Today forums. Multichannel Content Director Michael Morale discusses how the world’s first Alport stamp is a Macedonian mom’s latest win for rare disease patients.

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    September 20

    Community Development Manager Kevin Schaefer talks about some of the trending topics in the SMA News Today forums. In the next segment, we discuss how a phase 2 trial shows the effects of pre-symptomatic Spinraza treatment.

     

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