SMA News & Perspectives – Weekly Recap (September 30 – October 4)

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     SMA News Today Moderator 
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    SMA News Today forums moderators and contributors have been joining forces to create exclusive audio content for the SMA community. Here are the podcasts episodes from September 30 through October 4.

    September 30

    We discuss a Macedonian Gaucher activist, whose publicizing the plight of rare disease patients. Although fall and winter are her least favorite seasons, DeAnn finds being prepared can help the transition. She shares what she does to welcome, or at least tolerate the change of seasons.

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    October 2

    SMA News Today’s Director of Multichannel Content, Michael Morale, discusses how a prenatal blood test for SMA and other single gene diseases is now available. Community Development Manager Kevin Schaefer talks about “rolling through the seasons” when you have SMA.

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    October 4

    We discuss how adding Reldesemtiv to Spinraza or the investigational SMN-C1 improved muscle function in an SMA mouse model.
    Community Development Manager Kevin Schaefer reads an excerpt from Alyssa Silva’s column, “Finding Humor in Stinky Situations.”

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