Forum Replies Created

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  • adnan-hafizovic

    Member
    March 4, 2020 at 1:46 pm in reply to: Coronavirus: To Fear or Not to Fear

    Alyissa we Bosnians like to joke, but of course we pray for Americans, and for all the people in the world.These bacteria don’t like the sun and the day, as soon as spring comes I think the corona will be gone.

  • adnan-hafizovic

    Member
    March 3, 2020 at 11:56 am in reply to: Coronavirus: To Fear or Not to Fear

    We in Bosnia have the crazy fortune of not having a single person with corona virus so far, although Italy is close, there are cases of diseased persons in neighboring Croatia. We like to joke and say that in Bosnia we seem to pray a lot to God. It just doesn’t need to panic and needs to increase hygiene care, and of course eat plenty of Vitamin C.

  • adnan-hafizovic

    Member
    January 30, 2020 at 12:43 pm in reply to: Determination or waste of time?

    DeAnn, I use my teeth a lot in these situations, you generally have to find the right tactic, move the cable left to right. Of course when we can’t do something, it annoys us, very important thing for us is patience.

  • adnan-hafizovic

    Member
    January 20, 2020 at 6:56 am in reply to: Aging Parents

    Like you DeAnn  I lost my father, he died eight years ago, of course it struck me because he had been suffering from Parkinson’s for a long time. I watched him how he become a plant from a strong, well-educated man. But life is like that, my mom is 69 and I honestly wonder what life would be like without her. I know I’ll manage somehow, but we with SMA  area lot of conected with our parents. I think we are attached to our parents because we are physically weak and that weakness affects our emotions, most of us have problems with depression and anxiety.

  • adnan-hafizovic

    Member
    January 16, 2020 at 10:40 am in reply to: Let’s Talk SPCs and Other Options to Pee

    All types of catheterization are good options, so we can choose what suits us. I don’t use a catheter, I can still do it myself, I don’t know what you call it, the bottle I urinate into. Honestly being able to urinate alone gives me some satisfaction that I can still do something on my own. As you DeAnn didn’t know about the SPC until recently, neither am I, and I think the SPC is much better than just catheterization and if I used to have a catheter it would be the SPC.

  • adnan-hafizovic

    Member
    December 12, 2019 at 7:05 am in reply to: Movies and Life Lessons About SMA

    Kevin I watched these films before, I would especially like to point out Shaun of the Dead, I love Simon Pegg and that English humor. I am left with and will remain in my memory, Terminator 2: Judgment day. The movie is really a classic and I love Schwazenegger. It has this connection between me and Terminator 2, the day after I watched it, a war broke out in my city ,I think it was first May 1992.

  • adnan-hafizovic

    Member
    September 30, 2019 at 12:39 pm in reply to: Columnist Writes About His Daughter’s Ankle Injury

    I had similar accidents, but fortunately, and thanking God, I did not break anything. Once I dropped out of the wheelchair and fell on my leg, luckily I was wearing winter boots so I just stretched my ankles.

  • adnan-hafizovic

    Member
    September 18, 2019 at 10:00 am in reply to: Starting a Sports Podcast

    That is a good idea. You need basic topics to get started. I like to watch various sports, as most Europeans I am a big fan of soccer and the NBA.

  • It’s a nicer feeling to read paper books. Even though they have that smell. It’s just like when someone says that sex is better without a condom than with a condom. A bit of a joke.

  • adnan-hafizovic

    Member
    August 24, 2019 at 5:41 am in reply to: Overprotective Parents

    The best caregivers are our parents, but of course they sometimes overdo it. No matter what your friend can take care of herself, her mother must be afraid, maybe someone will inadvertently push her or something. I would love for each of us to do an experiment, to tell our parents that we found someone and that we want to get married . I would love to know how ours parents would react.

  • adnan-hafizovic

    Member
    August 9, 2019 at 9:28 am in reply to: Summer Reading/Watching

    Kevin I also like Stranger Things ,I just finished second season.I’m a big fan of Stephen King and this series is so similar to King themes.I also watched Handmaid’s Tale and i’m not so satisfied with them.Theme is good but but they didn’t use good.I’m in plan to watch all seasons of Fargo and The Office because of Steve Carell.I watched The Office a long time ago, but only for the first few seasons, so now I want to watch all the seasons.And yes I’m in plan to watch Dr.House.

  • adnan-hafizovic

    Member
    July 14, 2019 at 9:43 am in reply to: Cellphone preference

    I’m a fan of Android phones. The majority of the phones use android, because the Android OS is high quality. The iPhones are more expensive, but they are not better than other brands. I mainly buy Samsung mobile phones, I’m happy with them.Now I use Samsung S7 . I once had a LG smartphone, it is also good smartphone and it was very lightweight. And Huawei is good, but it should be avoided because of the US-China economic conflict. Sony is also good. At the end, the most expensive are the Iphone, then Samsung.

  • adnan-hafizovic

    Member
    July 5, 2019 at 8:24 am in reply to: new here

    Luis just write about your life with Jennifer ,you are good example for us.

  • adnan-hafizovic

    Member
    June 25, 2019 at 5:15 am in reply to: Flying With My Wheelchair, For the First Time

    Kevin can you spend 12 hours without water?

  • When we talk about religion and this topic, I did not have such an experience, although I believe and I know that many people I know are praying for God for my health. My opinion is that there is no need for it, because in Islam, and I believe in Christianity, that pray of  ill person is much more valuable to God, because we are the ones who are in great temptation. Recently, a friend of mine asked me to pray to God, so God allowed her to find a fine husband.

  • adnan-hafizovic

    Member
    June 19, 2019 at 5:50 am in reply to: Reining In My Illness Anxiety Is an Ongoing Effort

    The reason we have anxiety is because we are physically weak. The tablets for calm can help me, me helped   using magnesium. I had the fear that when I was alone, and once  happened to me that I was a few minutes  longer alone, and I got a panic attack , stronger heartbeats, choking and I thought I would faint, but of course this did not happen, it was just my imaginary fear. Fortunately, I’ve solved this problem, although sometimes I have anxiety, but very rarely. I forgot to I say that deep-controlled breathing calms down.

  • adnan-hafizovic

    Member
    June 17, 2019 at 11:59 am in reply to: Patience is a Virtue

    Our patience shows the most when we have to go to the toilet. I need time to dress and other things, and the best for us is when the same person helps us because that person knows how to dress fast  or slow.

  • The most annoying me when I feel good and I have no one to go somewher. And when I have a bad day then someone always calls me to go out and go somewhere. Usually when is the summer then I feel better and so I use the summer as much as I can.

  • adnan-hafizovic

    Member
    June 7, 2019 at 6:32 am in reply to: Wheelchair Breakdown

    I always have a few wheelchairs, I have three wheelchairs in total. Sometimes mechanics can not come right away or have to wait for some part. Luckily the wheelchairs never messed me up to far from my house, but it’s still not a nice feeling when that happens. It happened me oce that my batteries were old and my friends told me to go to the concert and when we were returning the batteries were discharged, then they had to push me, and the problem was that my house was on the hill, and they managed to reach me half a hill, but then they did not have the strength to go on. Fortunately, some guys came in and helped us, but wherever we go,  we must take care that our cell phone battery is full.

  • adnan-hafizovic

    Member
    June 6, 2019 at 12:00 pm in reply to: Vulnerability In Life With SMA

    When you mentioned this DeAnn  I remember it and how much I was ashamed when somebody sees me naked especially when I was younger. But now I do not care anyway

  • adnan-hafizovic

    Member
    June 3, 2019 at 11:49 am in reply to: Head and Neck Control

    I had similar problems, but with exercise and massage, my neck is in good condition. I think our neck muscles are in a better condition than others. But Kevin maybe Spinraza gives some strength in your neck.

  • adnan-hafizovic

    Member
    June 3, 2019 at 11:44 am in reply to: Let’s Foster More Acceptance

    It’s sad, but that’s our reality. Sometimes I think some people who see me on the street or restaurant, think what this guy want here, why he is not in the hospital bed or at home.

  • adnan-hafizovic

    Member
    April 11, 2019 at 9:00 am in reply to: Dealing With Monotony

    yes ,Kevin I also do that,main thing for is be with normal people.

  • Most of us do not have pain from SMA, but this damn tired. We must have enough time to rest, to do nothing, just rest.

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