@alyssa-silva
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Alyssa Silva joined the group
SMA Patients 1 month, 2 weeks ago -
JoJo Jonsson joined the group
SMA Patients 3 months, 2 weeks ago -
Blake Watson posted an update in the group
SMA Patients 3 months, 2 weeks agoOh cool, I didn’t realize we had a private group.
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Buck Wood joined the group
SMA Patients 6 months, 3 weeks ago-
Hopeless!
It’s frustrating, disingenuous and dismissive all at once to treat someone as myself as a mystery to be ignored. Before the human genome was mapped all of us who presented with lower motor neuron disease type symptoms were treated the same, with curiosity, interest and a desire to find an answer. Once the genome was mapped and they f…[Read more]
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sasha joined the group
SMA Patients 1 year, 1 month ago -
Dick joined the group
SMA Patients 1 year, 4 months ago-
I am happy to say that the day after I posted about the difficulty of obtaining the needed part for my wheelchair repair, the part suddenly appeared at the dealer, and I am now scheduled to have my chair repaired.
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Delphine Andrews joined the group
SMA Patients 1 year, 5 months ago -
Blake Watson joined the group
SMA Patients 1 year, 7 months ago -
Tracy Odell joined the group
SMA Patients 1 year, 10 months ago -
Zicari joined the group
SMA Patients 2 years, 2 months ago -
Nikki joined the group
SMA Patients 2 years, 6 months ago -
Andres Ceballos joined the group
SMA Patients 3 years, 6 months ago -
Thembelihle Lily Ngcai joined the group
SMA Patients 3 years, 10 months ago -
Lupa F joined the group
SMA Patients 3 years, 10 months ago -
mehdi joined the group
SMA Patients 3 years, 11 months ago -
Javaria Malik joined the group
SMA Patients 3 years, 11 months ago -
Jennifer Lewis joined the group
SMA Patients 4 years ago -
Dave Woodward joined the group
SMA Patients 4 years, 2 months ago -
Mike B joined the group
SMA Patients 4 years, 3 months ago -
Kelly Miller joined the group
SMA Patients 4 years, 3 months ago - Load More
