<?xml version="1.0" encoding="UTF-8"?>
<rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	xmlns:sy="http://purl.org/rss/1.0/modules/syndication/"
	xmlns:slash="http://purl.org/rss/1.0/modules/slash/"
		>

<channel>
	<title>SMA News Today Forums | art-slott | Activity</title>
	<link>https://smanewstoday.com/forums/members/art-slott/activity/</link>
	<atom:link href="https://smanewstoday.com/forums/members/art-slott/activity/feed/" rel="self" type="application/rss+xml" />
	<description>Activity feed for art-slott.</description>
	<lastBuildDate>Wed, 22 Apr 2026 13:56:01 -0500</lastBuildDate>
	<generator>https://buddypress.org/?v=2.20.0</generator>
	<language>en-US</language>
	<ttl>30</ttl>
	<sy:updatePeriod>hourly</sy:updatePeriod>
	<sy:updateFrequency>2</sy:updateFrequency>
		
								<item>
				<guid isPermaLink="false">1586cf999526fb76d98202e64a286853</guid>
				<title>art-slott replied to the discussion Maintenance Doses in the forum Spinraza (nusinersen)</title>
				<link>https://smanewstoday.com/forums/topic/maintenance-doses/#post-11339</link>
				<pubDate>Tue, 13 Mar 2018 23:40:11 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/maintenance-doses/#post-11339"><span class="bb-reply-lable">Reply to</span> Maintenance Doses</a></p> <div class="bb-content-inr-wrap"><p>Also here in the US.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">991a5a273d75b84679ddf1bcec14a473</guid>
				<title>art-slott replied to the discussion Maintenance Doses in the forum Spinraza (nusinersen)</title>
				<link>https://smanewstoday.com/forums/topic/maintenance-doses/#post-11336</link>
				<pubDate>Tue, 13 Mar 2018 21:18:46 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/maintenance-doses/#post-11336"><span class="bb-reply-lable">Reply to</span> Maintenance Doses</a></p> <div class="bb-content-inr-wrap"><p>Great advice, Kevin. Celebrate after every visit. Maybe a favorite restaurant in the city where the hospital is or one on the way home. It even motivates me with grocery shopping if I go to Dunkin Donuts first!</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">085dcd7a8bd3cf6aac6d349396349d6d</guid>
				<title>art-slott replied to the discussion Maintenance Doses in the forum Spinraza (nusinersen)</title>
				<link>https://smanewstoday.com/forums/topic/maintenance-doses/#post-11335</link>
				<pubDate>Tue, 13 Mar 2018 21:04:11 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/maintenance-doses/#post-11335"><span class="bb-reply-lable">Reply to</span> Maintenance Doses</a></p> <div class="bb-content-inr-wrap"><p>ICYMI DeAnn. From yesterday.</p>
<p>Also presented at the MDA Clinical Conference was a case series, “Nusinersen Experience in Teenagers and Young Adults With Spinal Muscular Atrophy,” which showcased SPINRAZA’s stabilizing or improving effect on teens and young adults with Type 2 or 3 SMA.</p>
<p>In the case series, participants (n=5) were 14 to 15&hellip;<span class="activity-read-more" id="activity-read-more-438"><a href="https://smanewstoday.com/forums/topic/maintenance-doses/#post-11335" rel="nofollow"> Read more</a></span></p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">47339e099c86d7d1ba859c38a585cd2d</guid>
				<title>art-slott replied to the discussion Maintenance Doses in the forum Spinraza (nusinersen)</title>
				<link>https://smanewstoday.com/forums/topic/maintenance-doses/#post-11328</link>
				<pubDate>Tue, 13 Mar 2018 16:56:46 -0500</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/maintenance-doses/#post-11328"><span class="bb-reply-lable">Reply to</span> Maintenance Doses</a></p> <div class="bb-content-inr-wrap"><p>Think of your favorite person/people at the hospital that you will be seeing again and perhaps some new friends will be made. Maybe a new Facebook friend or two.</p>
<p>Best wishes.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">04614552c19d554aae884ef099d0e46c</guid>
				<title>art-slott replied to the discussion “My Spinraza Journey” in the forum Spinraza (nusinersen)</title>
				<link>https://smanewstoday.com/forums/topic/my-spinraza-journey/#post-11180</link>
				<pubDate>Fri, 02 Feb 2018 18:42:30 -0600</pubDate>

									<content:encoded><![CDATA[<p class = "activity-discussion-title-wrap"><a href="https://smanewstoday.com/forums/forums/topic/my-spinraza-journey/#post-11180"><span class="bb-reply-lable">Reply to</span> “My Spinraza Journey”</a></p> <div class="bb-content-inr-wrap"><p>Biogen reported that 20% of Spinraza patients are over 17. So with those kind of numbers, if the data is positive enough, it makes it harder on the insurance companies and govt entities to deny coverage. I&#8217;m hoping we will hear a lot more about this older population at the annual AAN conference in April.</p>
</div>]]></content:encoded>
				
				
							</item>
					<item>
				<guid isPermaLink="false">230fa520614b339932ed3b5685d08800</guid>
				<title>art-slott updated their profile</title>
				<link>https://smanewstoday.com/forums/activity/p/233/</link>
				<pubDate>Thu, 01 Feb 2018 17:42:34 -0600</pubDate>

				
									<slash:comments>0</slash:comments>
				
							</item>
					<item>
				<guid isPermaLink="false">8efdc5f0237d76c6d13c92aa5a468cb7</guid>
				<title>Art Slott became a registered member</title>
				<link>https://smanewstoday.com/forums/activity/p/231/</link>
				<pubDate>Thu, 01 Feb 2018 17:36:01 -0600</pubDate>

				
									<slash:comments>1</slash:comments>
				
							</item>
		
	</channel>
</rss>
		