SMA News Today Forums | cocoseverest | Activity https://smanewstoday.com/forums/members/cocoseverest/activity/ Activity feed for cocoseverest. Fri, 10 Apr 2026 01:13:27 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 4c4db61e6d81e0a2c9e6e771190a6c62 cocoseverest replied to the discussion Colds, croup and allergies in my Type 1 SMA baby in the forum Parents​ ​and​ ​Caregivers​ https://smanewstoday.com/forums/topic/colds-croup-and-allergies-in-my-type-1-sma-baby/#post-11318 Mon, 12 Mar 2018 01:37:13 -0500 Reply to Colds, croup and allergies in my Type 1 SMA baby

Thank you for your replies! I do have a pulse ox machine, I haven’t had a chance to set it up. She is still breathing pretty good on her own and since started Spinraza (2 injections down) and so I didn’t feel a need to set it up for now, but you both are right! This would be a good time to set it up, especially through the night.

As for the… Read more

]]> 82d1f8a48820e80d76ad85d498cc812d cocoseverest started the discussion Colds, croup and allergies in my Type 1 SMA baby in the forum Parents​ ​and​ ​Caregivers​ https://smanewstoday.com/forums/forums/topic/colds-croup-and-allergies-in-my-type-1-sma-baby/ Sun, 11 Mar 2018 23:53:22 -0500 Colds, croup and allergies in my Type 1 SMA baby

Yesterday I noticed my 2 year old (non-SMA) woke up with a barking cough and congestion. She’s been battling allergies off and on for a couple of weeks, but that barking cough really got my attention. Later that night my 3 month old (type 1 SMA) began to sound congested and all through the night I was suctioning light green mucus from her nose,… Read more

]]> 96d5c9d541e7f64ebe2186e93eb94311 cocoseverest became a registered member https://smanewstoday.com/forums/activity/p/406/ Sun, 11 Mar 2018 23:39:42 -0500 0