SMA News Today Forums | diane | Activity

diane replied to the discussion Trying to move ahead in the forum Life Advice and Transitions

Tue, 29 Apr 2025 19:24:00 -0500

Thank you, readers. At this time, I don’t think there is anything anyone can do. I am trying to get remote part-time work so Drew doesn’t hold a burden. He tells me I don’t have to, but I want to. We have contacted the local county for any assistance, but the income he has is far beyond the minimum basics. He had IHSS before, and it got…

diane started the discussion Trying to move ahead in the forum Life Advice and Transitions

Thu, 24 Apr 2025 05:27:51 -0500

Trying to move ahead

I get it, I see it, and I am living it. I know my fiancé is working hard; he has worked hard to get to where he is. I see Drew for who he is and not what he is not. He is a great lawyer, a great lawyer: very understanding and very upfront and honest with his clients. But I see that hiring managers don’t see him move up. I feel like all they…

diane replied to the discussion How does anyone actually live independently? in the forum Adults With SMA

Sat, 30 Nov 2024 05:18:34 -0600

Reply to How does anyone actually live independently?

I am my fiance’s full-time caregiver; he moved out of his parents house a year ago, and I took over his parents. I quit my full-time job to take care of him. and it has helped him a lot. The only thing is that we are living paycheck to paycheck. with him being the only one working. He had IHSS (government-funded MediCal), but it was…

diane started the discussion Greetings in the forum Welcome Lounge

Tue, 30 Jul 2024 22:27:38 -0500

Greetings

Hi, Hello, and welcome everyone that reads this,

Let me introduce myself. I am Diane, and I am my fiancé’s caregiver, assistant, and arms and legs. Andrew is his name but he goes by Drew. Drew has type 2 SMA. I met Drew online 2 years ago on Match, and he always tells me why I chose him. I chose to be with him because of his personality, his…

diane became a registered member