SMA News Today Forums | federica-borsi | Activity https://smanewstoday.com/forums/members/federica-borsi/activity/ Activity feed for federica-borsi. Wed, 22 Apr 2026 15:17:12 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 d34681b9028414b336ad3f2bd0203838 federica-borsi and reza-e are now connected https://smanewstoday.com/forums/activity/p/400/ Fri, 09 Mar 2018 04:32:12 -0600 0 de504d77183b550d326d9c8d6af8b4aa federica-borsi joined the group Research and Development https://smanewstoday.com/forums/activity/p/192/ Fri, 19 Jan 2018 07:21:07 -0600 0 8daacad2c5cd29874a9cefde4a6f479a federica-borsi replied to the discussion “My Spinraza Journey” in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/topic/my-spinraza-journey/#post-11134 Wed, 17 Jan 2018 15:16:12 -0600 Reply to “My Spinraza Journey”

Hello!
I’m federica, I’m 22, type3. I’m italian. I would like to know if there is any adult among you who received Spinraza even though he has a fixed spine?
in Italy, due to bureaucracy and politics, doctors administer Spinraza only to children, but spinraza is also approved for adults. Italian doctors are afraid to do Spinraza to adults so… Read more

]]> 42e1eadc61b72d72f594471467d9c6ea federica-borsi replied to the discussion Welcome! in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/topic/welcome-2/#post-11135 Wed, 17 Jan 2018 15:10:51 -0600 Reply to Welcome!

Hello!

I’m Federica, I’m 22, type3. I’m italian.
I joined this forum because I would like to discuss with you, to exchange information about drugs, gene therapy, daily life, medical assistance and treatments.

I apologize for my bad english.

best regards

]]> 2e301bb9ca8e2a136968087aaf171503 Federica Borsi became a registered member https://smanewstoday.com/forums/activity/p/176/ Wed, 17 Jan 2018 10:35:04 -0600 1