Biography

Name

Heather Farley

Nickname

heather-farley

Year of Birth

1954

Gender

Female

Location

California

Relationship

Family

Short Bio

I am a graphic artist, I use to teach graphic design and digital arts but retired from teaching a few years ago.
I had never even heard of SMA until my son and his wife had their first baby and were told right away that she had SMA. I immediately started reading everything I could find about the disease and the new treatments. I want to know what to expect and how I can help my granddaughter and her parents.

 

SMA Type

Type II

How did you hear about us?

SMA News Website

How long have you or the person that you are caring for had SMA?

3 months

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