Biography

Name

Julio Chojeda Torres

Nickname

julio-chojeda-torres

Year of Birth

1949-03-05 00:00:00

Gender

Male

Location

LIma, PerĂº

Relationship

Patient

Short Bio

I am Julio Chojeda Torres, was diagnosed as having SMA-type 3 in 1968. Then I was told, “Sorry Julio, your condition has no cure”. More than 50 years have gone by, but things have not changed much for people with severe disabilities. Their survival continues depending on their families, and on my job in my case. I have no other 50 years but young people with these conditions in developing countries deserve a chance to live better lives by accessing to SPINRAZA treatments, for example. I wonder if People with SMA around the world could support this proposal.

SMA Type

Type III