SMA News Today Forums | KenBrace | Activity https://smanewstoday.com/forums/members/kenbrace/activity/ Activity feed for KenBrace. Sat, 18 Apr 2026 20:06:21 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 3c67b3ab78fca2a07323288d743bf0b0 KenBrace replied to the discussion Looking to Study in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/looking-to-study/#post-31331 Mon, 14 Aug 2023 00:47:24 -0500 Reply to Looking to Study

Hi Dianne,

Thank you that was a good summary. One aspect I’m really interested in are the SMN-plus possibilities. If the backup SMN gene is repaired then the primary issue is resolved but there may still be ways to help the body regrow and strengthen nerves. I can accept that some of the motor neurons may not be capable of coming back to life but…

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]]> 0d09fc80d69013107eb4e4cd8ed2b15a KenBrace started the discussion Looking to Study in the forum Welcome Lounge https://smanewstoday.com/forums/forums/topic/looking-to-study/ Fri, 11 Aug 2023 15:04:58 -0500 Looking to Study

Hey everyone! Been doing some research into SMA and trying to deepen my understanding of what causes it and how the various treatments work to address that. My girlfriend has Type 2 so I’m hoping to gain some insight that can help us with our decision making.

]]> 4b03881c6729fa56a10c2b899769029a KenBrace became a registered member https://smanewstoday.com/forums/activity/p/17499/ Thu, 10 Aug 2023 16:54:08 -0500 1