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Kevin Schaefer started the topic Day 8 of #31DaysofSMA: On Being a Wife, Mom, and Caregiver for My Spouse in the forum 31 Days of SMA 2022 2 days, 21 hours ago
Brittany Bingman knew she wanted to get married and raise a family from a young age. She dreamed of the kind of person she would marry and the life she would have.
While she did marry the man of her dreams, she took on an additional role that she didn’t envision. Brittany’s husband, Steve, has SMA, and she is his primary caregiver. She and…[Read more]
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Kevin Schaefer replied to the topic Day 2 of #31DaysofSMA: Facing My Challenges in Becoming a Mom in the forum 31 Days of SMA 2022 3 days, 22 hours ago
Absolutely!
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Kevin Schaefer replied to the topic Day 1 of #31DaysofSMA: Surviving Law School While Grappling With Illness in the forum 31 Days of SMA 2022 1 week ago
She has a focus on civil rights. @sgranby90 tagging you here.
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Kevin Schaefer replied to the topic Day 2 of #31DaysofSMA: Facing My Challenges in Becoming a Mom in the forum 31 Days of SMA 2022 1 week ago
I love her story! We were on a panel together at the conference this year.
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Kevin Schaefer started the topic Day 3 of #31DaysofSMA: Instead of a Horse, I Got a Wheelchair in the forum 31 Days of SMA 2022 1 week ago
Stéphanie Houvet has SMA Type 3 and lives with her parents in France. She writes about navigating adulthood, her education and career, and managing daily life.
When she was young, Stéphanie dreamed of having a horse and learning to ride. Instead, she got a wheelchair, which became a vessel of freedom and independence for her.
Here’s an e…[Read more]
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Kevin Schaefer replied to the topic Day 1 of #31DaysofSMA: Surviving Law School While Grappling With Illness in the forum 31 Days of SMA 2022 1 week, 1 day ago
It’s a great story. I enjoyed meeting Shaniqua and many other contributors this year at the conference.
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Kevin Schaefer started the topic Day 1 of #31DaysofSMA: Surviving Law School While Grappling With Illness in the forum 31 Days of SMA 2022 1 week, 2 days ago
Hey everyone, and happy SMA month!
We’re excited to kick off our 31 Days of SMA campaign with Shaniqua Granby’s story. Shaniqua writes about her experiences in law school, and how she managed life with SMA. With the support of family and friends and with a spirit of determination, she was able to pursue her dream.
Here’s an excerpt, “Thus, a…[Read more]
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Kevin Schaefer replied to the topic How do you define success? in the forum Adults With SMA 2 weeks, 2 days ago
Hey Blake, great blog post! Thanks for sharing.
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Kevin Schaefer replied to the topic Have you seen CODA? in the forum Disability in Media 3 months, 3 weeks ago
I finally watched CODA last night. I liked it ok but didn’t think it was amazing. Phenomenal cast and it’s a touching, feel-good coming-of-age comedy, but I get some criticisms from members of the deaf community. Like, there’s nothing wrong with telling a story from the perspective of a non-disabled family member, but it didn’t add up that they we…[Read more]
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Kevin Schaefer replied to the topic Dating Tips? in the forum SMA and Dating/Relationships 4 months ago
Hey Crystal, great to hear from you!
First off, I do think virtual dates and talking/texting are good ways to start. It gives you a chance to connect with someone first. Then you can discuss ways to meet in person. I have friends and caregivers who drive me a lot when we’re hanging out.
Regarding an assistive device, I use my wheelchair tray for…[Read more]
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Kevin Schaefer replied to the topic How a Meltdown Lead to Clarity in the forum Adults With SMA 4 months ago
Thanks, Blake! Yeah, it’s definitely cathartic to let it all out.
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Kevin Schaefer replied to the topic How a Meltdown Lead to Clarity in the forum Adults With SMA 4 months ago
Thanks for sharing!
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Kelly Miller and
Tyler Dukes are now friends 4 months, 1 week ago
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Kevin Schaefer started the topic Any SMA Gamers Out There? in the forum Disability in Media 5 months ago
Hey everyone!
One of our journalists is working on a story about a new video game that’s designed for young gamers with SMA. Check it out here.
Is anyone interested in talking about this? Just send an email to Hawken Miller at [email protected]. Thanks!
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Kevin Schaefer started the topic Ask an Expert Survey in the forum SMA Forums Welcome Lounge 6 months ago
Hey everyone! Hope you’re all doing well.
SMA News Today is inviting members of the community to participate in a new survey. We are working on an initiative in which SMA experts will address a variety of topics, and we want your input! We want to know what topics you are interested in and what burning questions you’ve always wished you coul…[Read more]
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Kelly Miller replied to the topic Olympics Lacking Representation in the forum Disability in Media 6 months ago
I’ll be honest with you, I don’t think it would be particularly helpful to the world in general. I think the only people who would notice there was a disabled person on the floor of the stadium would be other disabled people. There would be a lot of hullabaloo made over the one person who they would choose to represent. They would make a fuss and…[Read more]
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Kevin Schaefer replied to the topic Challenging Myself In Other Ways in the forum Adults With SMA 6 months, 1 week ago
Congrats! I know something like this would be good for me. I spend way too much on books, movies, collectibles, and eating out each month.
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Kelly Miller replied to the topic Managing Medical Supplies in the forum Adults With SMA 6 months, 1 week ago
I also have an overabundance of supplies for the inevitable mess ups by the DMEs. I’ve had to fight often with one of them (Edgepark) over my spc supplies. It’s a headache and I get angry b/c they can be very stupid. But for every time they messed up, my other DME (Coram) does a great job with my feeding tube stuff.
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Kelly Miller replied to the topic Finding Love in the forum Adults With SMA 6 months, 1 week ago
I have to say that I don’t think anyone should stop with the dating sites, but they don’t have to be traditional like OKCupid or any of the others. I think everyone on here is worth talking to and has a plethora of things to say to anyone. I’ve been married for 24 1/2 yrs, and I met my husband online back when chat rooms were a big deal. There was…[Read more]
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Kevin Schaefer replied to the topic Finding Love in the forum Adults With SMA 6 months, 1 week ago
Hey Blake, I fixed it. Thanks for sharing.
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