Krystal

Amanda Hanki’s daughter, Harper, was diagnosed with SMA Type 1 two and a half years ago. Though adapting to life with SMA was overwhelming at first, Amanda was grateful that Harper was able to receive the treatment Zolgensma. Throughout her family’s journey, she’s found strength in the SMA community. Read their story here.

Here’s an excerpt,…[Read more]

Brittany Bingman knew she wanted to get married and raise a family from a young age. She dreamed of the kind of person she would marry and the life she would have.

While she did marry the man of her dreams, she took on an additional role that she didn’t envision. Brittany’s husband, Steve, has SMA, and she is his primary caregiver. She and…[Read more]

Stéphanie Houvet has SMA Type 3 and lives with her parents in France. She writes about navigating adulthood, her education and career, and managing daily life.

When she was young, Stéphanie dreamed of having a horse and learning to ride. Instead, she got a wheelchair, which became a vessel of freedom and independence for her.

Here’s an e…[Read more]

Hey everyone, and happy SMA month!

We’re excited to kick off our 31 Days of SMA campaign with Shaniqua Granby’s story. Shaniqua writes about her experiences in law school, and how she managed life with SMA. With the support of family and friends and with a spirit of determination, she was able to pursue her dream.

Here’s an excerpt, “Thus, a…[Read more]

Hey everyone!

One of our journalists is working on a story about a new video game that’s designed for young gamers with SMA. Check it out here.

Is anyone interested in talking about this? Just send an email to Hawken Miller at [email protected]. Thanks!

Hey everyone! Hope you’re all doing well.

SMA News Today is inviting members of the community to participate in a new survey. We are working on an initiative in which SMA experts will address a variety of topics, and we want your input! We want to know what topics you are interested in and what burning questions you’ve always wished you coul…[Read more]