Short Bio |
After all that has transpired with Biogen and the difficulties adults are experiencing all over the world, I would like to think further cures or treatments will consider the Adults worth studying and keeping on the same track as the children. While the Adults are pushing to get the treatment…many are losing abilities as we speak. Yes, the children are SO important, but why can’t you take each group and do trials at the same time. Please consider the adults as important. My husband is 53 year old, type 3 and we are on treatment 5 of spinraza…many are not as lucky. For those people I plead for the attention to the adults as well….
|