SMA News Today Forums | marta-ribeiro | Activity https://smanewstoday.com/forums/members/marta-ribeiro/activity/ Activity feed for marta-ribeiro. Sun, 19 Apr 2026 14:09:30 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 259d6c6e7733e1805534af8aeddfd555 marta-ribeiro started the discussion Have you met Alyssa? in the forum Raising Awareness of SMA https://smanewstoday.com/forums/forums/topic/alyssa-silva/ Thu, 05 Jul 2018 17:29:46 -0500 Have you met Alyssa?

 

Meet the amazing Alyssa Silva! She’s a columnist here in SMA News Today and an extremely inspiring girl! Watch this documentary to get to know her a little bit better!

This is just a short video but the full-length documentary received widespread acclaim and also won first prize in the humanitarian… Read more

]]> 936b69e5b4e04b2ab1f076553c98f911 marta-ribeiro replied to the discussion ‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/life-atrophy-documentary-young-boys-journey-spinraza/#post-12871 Thu, 05 Jul 2018 10:38:12 -0500 Reply to ‘Life and Atrophy’: A Documentary About a Young Boy’s Journey With Spinraza

This looks like such a great documentary! Would definitely love to watch the whole thing!

Thanks for sharing, Isaura! 🙂

]]> cf5d82a37b6b45fa243a8d1f6e0e66c1 marta-ribeiro started the discussion Having SMA and using a "handicapped card" in the forum https://smanewstoday.com/forums/forums/topic/sma-using-handicapped-card/ Tue, 01 May 2018 23:12:56 -0500 Having SMA and using a "handicapped card"

Columnist and forums moderator Kevin Schaefer talks about living with SMA, living his daily life with some restritions and using his “handicapped card” to help him in some ocasions.

Read what else Kevin has to say about it here: “Using My ‘Handicapped Card’”

Do you have a “handicapped card”? Do you also make the most it like Kevin does?

]]> 34d03a4c36c23e7ae6d13b9a4467ed7f Marta Ribeiro changed their profile picture https://smanewstoday.com/forums/activity/p/697/ Wed, 18 Apr 2018 12:23:34 -0500 0