SMA News Today Forums | monika-lemeshonok | Activity https://smanewstoday.com/forums/members/monika-lemeshonok/activity/ Activity feed for monika-lemeshonok. Sat, 02 May 2026 12:26:30 -0500 https://buddypress.org/?v=2.21.1 en-US 30 hourly 2 b06bc88bf87abc0b9436d3a9b932b58c monika-lemeshonok replied to the discussion Spinraza vs Zolgensma in the forum Parents​ ​and​ ​Caregivers​ https://smanewstoday.com/forums/forums/topic/spinraza-vs-zolgensma/#post-16279 Tue, 01 Jan 2019 18:16:11 -0600 Reply to Spinraza vs Zolgensma

Kyrie, tell me please, already allowed combination therapy such as gene therapy + spinraza or<gene therapy + Roche. I also have type 2 sma and I hope that in the future gene therapy will be available for adults with type 2. Maybe could you give email contact of doctor who knows about the availability of Zolgensma for adults?

]]> 563cf856763d1d812f743bc6eee4e29c monika-lemeshonok replied to the discussion Do you find it hard to gain weight? in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/find-hard-gain-weight/#post-11749 Tue, 24 Apr 2018 15:02:18 -0500 Reply to Do you find it hard to gain weight?

<span id=”result_box” class=”” lang=”en”><span class=””>I have  weight of 24 kg and I’m 32 years old, I never worried from it because it does not bother me.</span> M<span class=””>y neurologist said that I should not increase my weight, because the fat mass will put pressure on the my bones and scoliosis and it will be badly.</span>… Read more

]]> 66d1cd6edf6d05230ba54ac7ecca8c45 Monika Lemeshonok changed their profile picture https://smanewstoday.com/forums/activity/p/716/ Thu, 19 Apr 2018 20:02:41 -0500 0 a6f704d5e26a4425b2f308cdac66f5cf monika-lemeshonok replied to the discussion Welcome! in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/topic/welcome-2/#post-11150 Mon, 22 Jan 2018 18:40:12 -0600 Reply to Welcome!

Hi, everyone!

My name is Monika, I am from Belarus, have SMA 2 type, I am 32 years old.  I am artist, all my life I like painting, art it is my life. I have art exhibitions in differents european country. I am believe in miracle and I want find good treatment.

Thanks for this forum!

 

]]> 20132d1c646ede41b145abc0e7182e9a monika-lemeshonok joined the group Research and Development https://smanewstoday.com/forums/activity/p/201/ Mon, 22 Jan 2018 12:43:52 -0600 0 c56baf35a0a015f36dddc112d7d9e21f monika-lemeshonok updated their profile https://smanewstoday.com/forums/activity/p/200/ Mon, 22 Jan 2018 12:34:30 -0600 0 155cac2ecd72ffc5c945314eecbcc4ca Monika Lemeshonok became a registered member https://smanewstoday.com/forums/activity/p/198/ Mon, 22 Jan 2018 12:30:34 -0600 0