SMA News Today Forums | pawel-rawicki | Activity https://smanewstoday.com/forums/members/pawelrawicki/activity/ Activity feed for pawel-rawicki. Sat, 25 Apr 2026 03:22:41 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 61107921ec695cbb478999b72e2c8ac6 pawel-rawicki replied to the discussion Switching from Spinraza to Zolgensma? in the forum Zolgensma (onasemnogene abeparvovec) https://smanewstoday.com/forums/forums/topic/switching-from-spinraza-to-zolgensma/#post-20457 Wed, 04 Sep 2019 14:36:19 -0500 Reply to Switching from Spinraza to Zolgensma?

Thanks a lot for all your input!
One thing to clarify: there is no chance we stop spinraza unless we decide to switch to Zolgensma and at some point in the future (years in the future) a neurologist will be certain that Alex can stop taking Spinraza. We’re thinking about Zolgensma but maybe the word “switching” was bad choice. It is more… Read more

]]> a05d01462029a0d21ad5d558f21efeaa pawel-rawicki started the discussion Switching from Spinraza to Zolgensma? in the forum Zolgensma (onasemnogene abeparvovec) https://smanewstoday.com/forums/forums/topic/switching-from-spinraza-to-zolgensma/ Tue, 03 Sep 2019 17:39:44 -0500 Switching from Spinraza to Zolgensma?

Hey everyone, I am more and more confused and misinformed but maybe here you can give good advice. So, the background story:
I’m living in Poland (European Union). My son Alex was looking healthy for 3 weeks and then was getting weaker and weaker. Quickly diagnosed with SMA type I and he received 1st dose of Spinraza when he was 37 days old.… Read more

]]> 75c70a7c2afc5ac7065903f65354f0ca pawel-rawicki became a registered member https://smanewstoday.com/forums/activity/p/7193/ Tue, 03 Sep 2019 17:23:29 -0500 1