I’m excited to share with you all the latest episode of the SMA News Today Podcast. In this episode, Kellie Cusack shares her story of being a young adult with SMA Type 2. Kellie and I met at this year’s Cure SMA conference in Disneyland, and she reached out to me about coming on the podca…[Read more]
So for today’s Motivation Monday topic, check out another one of our recent 31 Days of SMA stories. My friend Brian wrote about his daughter’s nonprofit organization Adyn’s Dream, and about community. Brian and his family have become part of several communities as a result of Adyn’s…[Read more]
Check out today’s 31 Days of SMA story here. Ashley writes about her high school experience, and how SMA did and didn’t affect it. She emphasizes doing extracurricular activities and staying active. For her, cheerleading made her high school years special.
Check out the latest 31 Days of SMA story here. My friend Collin wrote about his marriage, and how SMA affects it. This is a great post for people who want to know more about inter-abled relationships.
Hey everyone! Hope you’re all having a great week.
Check out my latest column here. I wrote about the diversity and unity within the SMA community, and I tied this concept to our 31 Days of SMA initiative. People in this community have all kinds of stories to tell, and I love to hear them. It’s why I do what I do.
So for today’s Motivation Monday topic, I wanted to share my friend Tyler’s 31 Days of SMA story. Living independently is a topic we’ve brought up here many times. Trying to figure out all the logistics of it can be challenging, when you have SMA.
Hey everyone! Hope you all are having a great weekend.
Today’s 31 Days of SMA post, which you can view here, addresses a heavy topic. My friend, Dr. Jim Berry, wrote about losing his eldest son Carson in December of 2018. Carson was a friend of mine, and he had SMA Type II as well. I wrote a column about him earlier this year.
Check out today’s 31 Days of SMA story here. In this post, Michael’s physical therapist Emily writes about her experiences working with people who have SMA. Emily has worked with Michael for about a year, and in that time has learned a ton about SMA.
Do you have any takeaways from this story? What are…[Read more]
Thanks for sharing Melissa! I really enjoyed reading your perspective. I know societal ignorance will always be there, but my hope is that stories like yours will challenge people’s negative stereotypes about people with disabilities.
SMA News Today is strictly a news and information website about the disease. It does not provide medical advice, diagnosis or treatment. This content is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read on this website.