Joe Pierce

Photo contributed by Kellie Cusack

Hey everyone!

I’m excited to share with you all the latest episode of the SMA News Today Podcast. In this episode, Kellie Cusack shares her story of being a young adult with SMA Type 2. Kellie and I met at this year’s Cure SMA conference in Disneyland, and she reached out to me about coming on the podca…[Read more]

Hey everyone! Hope you all had a great weekend.

So for today’s Motivation Monday topic, check out another one of our recent 31 Days of SMA stories. My friend Brian wrote about his daughter’s nonprofit organization Adyn’s Dream, and about community. Brian and his family have become part of several communities as a result of Adyn’s…[Read more]

Hey everyone! Happy Friday!

Check out today’s 31 Days of SMA story here. Ashley writes about her high school experience, and how SMA did and didn’t affect it. She emphasizes doing extracurricular activities and staying active. For her, cheerleading made her high school years special.

Do you have any takeaways from Ashley’s story?

Hope…[Read more]

Hey everyone! It’s almost Friday!

Check out today’s 31 Days of SMA story here. Annie wrote about how she acquired an adaptive van. This is a fascinating topic, and Annie outlined the process in detail.

Personally, I’ve never really considered driving myself. I’m content with family and friends driving me, and I can’t afford a vehicle.…[Read more]

Hey everyone!

Check out the latest 31 Days of SMA story here. My friend Collin wrote about his marriage, and how SMA affects it. This is a great post for people who want to know more about inter-abled relationships.

Do you have any takeaways from this story?

Hey everyone! Hope you’re all having a great week.

Check out my latest column here. I wrote about the diversity and unity within the SMA community, and I tied this concept to our 31 Days of SMA initiative. People in this community have all kinds of stories to tell, and I love to hear them. It’s why I do what I do.

Do you have any…[Read more]

Hey everyone! Hope you all are having a great week.

Check out yesterday’s 31 Days of SMA story here. My friend Abby wrote about adaptive fashion, and her advocacy work in this area. She and her best friend Kristen do a lot of this on their Instagram page.

Do you have any takeaways from Abby’s story? Do you have any experiences w…[Read more]

Photo Contributed by Tyler Dukes

Hey everyone! Hope you all had a great weekend.

So for today’s Motivation Monday topic, I wanted to share my friend Tyler’s 31 Days of SMA story. Living independently is a topic we’ve brought up here many times. Trying to figure out all the logistics of it can be challenging, when you have SMA.

Tyler w…[Read more]

Hey everyone! Hope you all are having a great weekend.

Today’s 31 Days of SMA post, which you can view here, addresses a heavy topic. My friend, Dr. Jim Berry, wrote about losing his eldest son Carson in December of 2018. Carson was a friend of mine, and he had SMA Type II as well. I wrote a column about him earlier this year.

I know…[Read more]

Hey everyone, happy Friday!

Check out today’s 31 Days of SMA story here. In this post, Michael’s physical therapist Emily writes about her experiences working with people who have SMA. Emily has worked with Michael for about a year, and in that time has learned a ton about SMA.

Do you have any takeaways from this story? What are…[Read more]