SMA News Today Forums | pooja-arora | Activity https://smanewstoday.com/forums/members/pooja-arora/activity/ Activity feed for pooja-arora. Tue, 14 Apr 2026 19:11:51 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 eb15f84a454070c0bce63570ee2b721e pooja-arora replied to the discussion Effects on Adults with SMA in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/topic/effects-on-adults-with-sma/#post-11653 Wed, 18 Apr 2018 05:43:18 -0500 Reply to Effects on Adults with SMA

How is treatment charges are managed, as it is very very high and also not available in Inida?

]]> 10726721f7054b8bb21afc3969fe2b93 pooja-arora and kevin-schaefer are now connected https://smanewstoday.com/forums/activity/p/333/ Thu, 22 Feb 2018 15:08:05 -0600 0 ca4b85515b21e459069dd7bd628e1513 pooja-arora replied to the discussion Effects on Adults with SMA in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/topic/effects-on-adults-with-sma/#post-11254 Thu, 22 Feb 2018 07:30:21 -0600 Reply to Effects on Adults with SMA

Kevin, what improvement you feel.

I mean if you could tell in details that what actions/ movements which you were facing difficulties earlier and is improved after Spinraza treatment.

]]> 9c6aaa48f5681e82b85d134ab21af12d pooja-arora replied to the discussion Effects on Adults with SMA in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/topic/effects-on-adults-with-sma/#post-11253 Thu, 22 Feb 2018 07:28:21 -0600 Reply to Effects on Adults with SMA

Hi I am from India, and adult with Type 3 SMA.

Please let me know if I can also go for Spinraza clinical trial.

]]> 4e17ea0eee91b30a83356236f44e4df2 pooja-arora joined the group Research and Development https://smanewstoday.com/forums/activity/p/287/ Wed, 14 Feb 2018 06:28:03 -0600 0 398b6f360908fac3fa1546ce9881dcaa pooja-arora replied to the discussion Effects on Adults with SMA in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/topic/effects-on-adults-with-sma/#post-11213 Wed, 14 Feb 2018 06:26:33 -0600 Reply to Effects on Adults with SMA

I am SMA Type 3 or Type 4 sufferer.

I am looking for treatments. presently I  do all my chores myself.

]]> 895e79640d4b43620b3c3cac6f421adb pooja-arora updated their profile https://smanewstoday.com/forums/activity/p/285/ Wed, 14 Feb 2018 06:24:09 -0600 0 5e01a6099babed3e82af60b1115b4a08 Pooja Arora changed their profile picture https://smanewstoday.com/forums/activity/p/284/ Wed, 14 Feb 2018 06:22:25 -0600 0 c53854066e37333afa7a86b9f13b7d38 Pooja Arora changed their profile picture https://smanewstoday.com/forums/activity/p/283/ Wed, 14 Feb 2018 06:21:43 -0600 0 027cf6ca4cc9402f90846665396a39dd Pooja Arora became a registered member https://smanewstoday.com/forums/activity/p/281/ Wed, 14 Feb 2018 06:13:58 -0600 0