SMA News Today Forums | rick-slent | Activity https://smanewstoday.com/forums/members/rickslent/activity/ Activity feed for rick-slent. Thu, 16 Apr 2026 20:45:16 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 1e2b26e90aab915ab8e3379664764d7c rick-slent replied to the discussion Spinal Cord Stimulation in the forum Treatments and Research https://smanewstoday.com/forums/forums/topic/spinal-cord-stimulation/#post-32656 Thu, 20 Feb 2025 20:26:02 -0600 Reply to Spinal Cord Stimulation

Hi Barbara,

I have been on Spinraza for the past 5 years and also haven’t had much success. The videos are at the very very bottom past all the references and stuff on the first article I posted. They are labeled as supplemental videos.

]]> 770409c24e2b982c2cc33af6712085da rick-slent replied to the discussion Spinal Cord Stimulation in the forum Treatments and Research https://smanewstoday.com/forums/forums/topic/spinal-cord-stimulation/#post-32647 Tue, 18 Feb 2025 17:08:09 -0600 Reply to Spinal Cord Stimulation

Yes, it is exciting. It looks like they are recruiting for a trial now for non-ambulatory folks with the focus on upper limbs!

]]> 2c9f6cc72dd9b7e34c022680c9def5dd rick-slent replied to the discussion Spinal Cord Stimulation in the forum Treatments and Research https://smanewstoday.com/forums/forums/topic/spinal-cord-stimulation/#post-32629 Tue, 11 Feb 2025 16:00:53 -0600 Reply to Spinal Cord Stimulation

Here is a synopsis of the study: https://www.upmcphysicianresources.com/news/020525-spinal-nerve-stimulation

upmcphysicianresources.com

Spinal Cord Stimulation Restores Neural Function | UPMC Physician Resources

A new drug-free, minimally invasive intervention targets the root cause of progressive loss of neural function in SMA, an inherited neuromuscular disease.

]]> 534321a9ec6c4c03e706a86f89c2c618 rick-slent started the discussion Spinal Cord Stimulation in the forum Treatments and Research https://smanewstoday.com/forums/forums/topic/spinal-cord-stimulation/ Tue, 11 Feb 2025 15:57:18 -0600 Spinal Cord Stimulation

Has anyone heard anything on these tests https://www.nature.com/articles/s41591-024-03484-8 ?

Looks very exciting since this is only the first attempt. Hopefully they can approve even more on this.

The videos at the bottom of the article are very compelling and the first time I’ve seen real improvement in someone.

nature.com

First-in-human study of epidural spinal cord stimulation in individuals with spinal muscular atrophy - Nature Medicine

Improved muscle function, strength and fatigue measures were observed after electrical spinal cord stimulation in individuals with spinal muscular atrophy.

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