| Short Bio |
My nephew Aryan was born at 33 weeks on July 2, 2020. My sister had a regular pregnancy and didn’t think her baby was ill. He is in NICU unit at Benioff UCSF and they say his condition is rare. He hasn’t moved, cried, or breathed on his own. They have told my sister he has a rare disorder and they don’t know enough to treat him. I am reaching out on her behalf with her permission to find out what we can do to save him.
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| How long have you or the person that you are caring for had SMA? |
2 weeks
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