SMA News Today Forums | shinji78 | Activity https://smanewstoday.com/forums/members/shinji78/activity/ Activity feed for shinji78. Thu, 23 Apr 2026 03:18:00 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 cd1b4af84294086019dea81309bbcf78 shinji78 replied to the discussion To cost vs benefit evaluators in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/to-cost-vs-benefit-evaluators/#post-25610 Tue, 22 Dec 2020 20:51:31 -0600 Reply to To cost vs benefit evaluators

Thanks Alyssa.

Too bad same story repeats over and over again to many people.

Thanks for your words

]]> a9d17c1ee7dcb11c706572bd9e179a6e shinji78 updated their profile https://smanewstoday.com/forums/activity/p/12012/ Mon, 21 Dec 2020 15:54:12 -0600 0 02a207783b7b3032bd2772a516d848cd shinji78 started the discussion To cost vs benefit evaluators in the forum Spinraza (nusinersen) https://smanewstoday.com/forums/forums/topic/to-cost-vs-benefit-evaluators/ Mon, 21 Dec 2020 15:53:34 -0600 To cost vs benefit evaluators

Hi all

My first time using this forum 🙂

My partner is type III and still able to walk. No long distances, no steep walkways, but walk.

A couple of years ago we were informed by her neurologist about a potential treatment named ‘Spinraza’. She told us it was under revision and waiting to be approved in the UK. Then it had to be reviewed by… Read more

]]> 6b834edb64ca1e5d3e72bf57a966fb53 shinji78 became a registered member https://smanewstoday.com/forums/activity/p/12010/ Mon, 21 Dec 2020 15:46:01 -0600 0