SMA News Today Forums | shawn-stewart | Activity https://smanewstoday.com/forums/members/steweey/activity/ Activity feed for shawn-stewart. Sat, 04 Apr 2026 11:57:03 -0500 https://buddypress.org/?v=2.20.0 en-US 30 hourly 2 996f3f657ce19aa970df78fe98905bcc shawn-stewart replied to the discussion Reflecting On My Bobblehead Days in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/reflecting-on-my-bobblehead-days/#post-19628 Tue, 02 Jul 2019 23:08:16 -0500 Reply to Reflecting On My Bobblehead Days

Kevin, it was great chatting with you at the conference.  No I don’t use a chest strap, I just wear the seat belt from the van which has a shoulder belt.

]]> 2210ba0dddc2fe3b31bc0f70344178a8 shawn-stewart replied to the discussion Reflecting On My Bobblehead Days in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/reflecting-on-my-bobblehead-days/#post-19518 Sun, 23 Jun 2019 01:48:25 -0500 Reply to Reflecting On My Bobblehead Days

Great article Kevin, I have a friend that jokes with me about being a bobblehead especially when riding in my van.  My head control has improved as well since being on Spinraza, but occasionally it will fall forward if we have to stop quickly in my van.  My friend suggested I get a strap to hold my head up while riding in a vehicle to prevent a… Read more

]]> 868a3e3e2a8ae516e44f129076cce713 shawn-stewart replied to the discussion Dealing With Broken Bones in the forum Adults ​With​ ​SMA https://smanewstoday.com/forums/forums/topic/dealing-broken-bones/#post-14711 Thu, 18 Oct 2018 22:14:44 -0500 Reply to Dealing With Broken Bones

I broke my left femur, right hip and right humerus.  All separate incidents and all wheelchair accidents.  The right arm was 3 months ago and the least painful.  Femur was the worst.  I take liquid vitamin D every day now to help my bones now.

]]> 74d07e8438d65548708611e3b41e1e45 Shawn Stewart changed their profile picture https://smanewstoday.com/forums/activity/p/3061/ Thu, 11 Oct 2018 20:44:06 -0500 0 8ebe06a5bdbc1e62fac0b6b871e0a138 shawn-stewart posted a new activity comment https://smanewstoday.com/forums/activity/p/3039/#acomment-3060 Thu, 11 Oct 2018 20:41:58 -0500 Hey Michael, thanks for inviting me to join the forum. I’m glad I could share my experience with the SIC port and my Spinraza journey on the podcast, I hope the listeners learn some valuable information about having a port placed for Spinraza.

In reply to - shawn-stewart became a registered member ]]> 7dcbadeca92cd0d0a0f45e568a4e50d9 shawn-stewart posted a new activity comment https://smanewstoday.com/forums/activity/p/3039/#acomment-3059 Thu, 11 Oct 2018 20:37:04 -0500 Thank you Ryan.

In reply to - shawn-stewart became a registered member ]]> f029783022f6ba12cc349c29871a1ce6 shawn-stewart posted a new activity comment https://smanewstoday.com/forums/activity/p/3039/#acomment-3058 Thu, 11 Oct 2018 20:36:37 -0500 Thanks Kevin, I look forward to sharing my experiences with SMA and getting to hear from others as well.

In reply to - shawn-stewart became a registered member ]]> dfed233b2ef85522c4fde2210471995f shawn-stewart became a registered member https://smanewstoday.com/forums/activity/p/3039/ Wed, 10 Oct 2018 21:16:13 -0500 6